akronchildrens.org

Michael: He’s Writing His Own Book

Michael came to us at age 4.  He had unspecified delays and medical problems.

Michael has a severe movement disorder that sometimes goes way beyond the scope of understanding. He will thrash and involuntarily kick for days, weeks, and on some occasion months. His episodes are usually started by an illness or surgical procedure. This time it was a routine endoscope that contributed to now three weeks in the hospital. He developed a throat infection and fever and we were off to another wild ride.

Michael doesn’t fit the average medication rules, it takes much higher levels to gain control of his situation.

We are so thankful for the doctors who have known about Michael from the past and for their commitment to work together as a team to treat him. Although we don’t know how long this episode will last, we are confident that the staff will consistently work in Michael’s best interest.

Having had several children in many different hospitals throughout the years, we have found Akron Children’s especially team oriented. And, we are impressed with the nurses compassion. In the past, people coming into contact with Michael and our other children, barely spoke to them. Here at Akron Children’s they treat him with love and compassion, speaking to him about everything they are doing even though he is non verbal.

Drs. Moses, Nard and Mowad have been instrumental in explaining his history and every PICU doctor has been wonderful. We especially like Akron Children’s philosophy in having the parents well-informed and actually considered to be an important part of helping their child.

Even the non-medical staff is great! The chaplains, social workers, therapists, housekeeping, maintenance, food services are compassionate and helpful.

As I said before, it is uncertain how long this episode will last, and the outcome, but we do know that those here at Akron Children’s will continue to work for a solution for Michael. We thank them for that. We continue to pray for those working on Michael’s case, and that God will encompass them with knowledge needed for each child they work with.