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Navigating the waters with Jordan

Jordan

Jordan

Jordan has been growing a little more each day. His language skills are blooming, mobility improving, and he’s becoming more involved in services that are provided to kids who may need a little more assistance blooming into who they are.

We were approached by a few teachers, therapists, and coordinators at different times asking if we would like to enroll Jordan in the 2-year-old classroom at our county’s Windfall Preschool, which is part of the board of developmental disabilities.

I’ll be honest. At first I was a little apprehensive. Randy and I discussed the idea with our therapists and they painted a picture of how so many children thrive in an environment with their peers. Of course we have a little less than a month before he would be able to start, but the way it sounds we will be on a waiting list.

Another advantage of the classroom environment is a speech therapist will be involved in the team to work with all of the children. Jordan’s speech isn’t on the top of my list of concerns, but I don’t want him to fall behind either.

Over the last week he’s pick up at least 5 new words that we understand. Of course you’ll also get the crazy stories as he talks with his hands and gives some great dialogue with his facial expressions along with a change of voice.

Jordan doing aqua therapyI’ve been so excited for our summer temperatures to arrive so we can get our feet wet in a pool. After talking with one of Jordan’s coordinators, we decided to look into aqua therapy. This would get Jordan in a pool with warm water and a physical therapist to assist him one-on-one to help him improve his strength while having a blast.

And a blast he has been having. We go two times a week for around 40 minutes. He works on kicking his legs, moving on a pool noodle, and walking and side stepping on the bench near the edge inside the pool. It could be hope, but we definitely feel there is a difference in his leg strength since starting.

We are also in the process of getting Jordan his own walker. Until now we have been borrowing one, but our physical therapist felt we would need to get one of our own. She suggested getting one that has more of an all-terrain wheel. So a searching I went.

jordan-may-2013I stumbled upon what’s called a Crocodile Gait Trainer. It is used for kiddos ranging from mild to moderate disabilities and offers attachments to assist if you need it. Currently Jordan just needs the gait trainer.

Not only does it have a fun name, but it’s made for indoor/outdoor use and it folds down. We love to take Jordan to the park so these wheels will help him be able to go all around. I can’t wait to share pictures of him cruising around.

Our current goal has been to assist Jordan in strengthening his hips. His hips and knees are weak so it was hard for him to try to maneuver around so we’ve placed knee immobilizers during his walker time. It’s made a big difference.

And now with swimming his knees seem a little stronger. I’m anxious to see what Dr. Kerwyn Jones and Dr. Baird say during our Myelo Clinic day in June.

We’re having a blast and are excited about so many changes and chances to assist Jordan to be the best Jordan he can be. Of course Jordan has been a trouper in being on board and adjusting well to all of these changes.

In fact I think he looks forward to flirting with the older ladies when he goes to aqua therapy, but sometimes he’s a little too distracted with his surroundings.

These are a couple of my favorite things:

  • the way you squeeze my neck a little harder for a big ol’ hug
  • the first time you called out “Dad!” for him to come in to greet you in the morning

Read more about Megs’ and Randy’s journey of raising a child with spina bifida through her blog, Labor of Love.