More than 2,000 miles separated Amy Tippets from her nearest family members when she and her husband, Trevor, received difficult news 16 weeks into their third pregnancy. Their in-utero daughter was diagnosed not only with Trisomy 21 (Down syndrome), but with a congenital heart defect called AVSD that would require surgery soon after she was […]
Families and patients share their experiences with the Akron Children's Hospital Heart Center.
Katherine Schroeder was born with a hole in her heart and an abnormal valve, known as congenital heart disease. She then developed other heart defects. She had her first surgery at 1 month old, which repaired the hole in her heart. At 2 months, she had a metal valve put into her chest. And […]
Jack Cleavenger was full of surprises when he was born. Not only did he surprise his parents by arriving early at 34 weeks, he was also born with Down syndrome and a heart problem. “Up to that point, there had been no indication that anything was wrong,” says Sandi, his mother. At just 2 […]
Four and a half years ago our almost 4-month-old baby girl had just had open heart surgery. On the day of surgery I fought back tears, tried to be brave, and smiled and waved at her as she was carried away by two loving nurses into surgery. Without surgery Bekah wouldn’t have lived past toddlerhood. […]
With recent news that Cavs’ latest trade pick, Channing Frye, was finally cleared to play after his physical, it reminds me of the debate that’s been going on for decades: Should all athletes be screened for enlarged heart syndrome? There are 2 types of enlarged hearts. The first, athletic heart syndrome, is caused by normal […]
While most children switch from pediatric doctors to adult ones around the age of 18, 30-year-old Becky Boyd still comes to Akron Children’s Hospital for specialized treatment for her congenital heart disease. She’s part of a group of adults who receive treatment at Akron Children’s adult congenital heart disease program. “The doctors found out when […]