akronchildrens.org

Experience Akron Children's through the eyes - and hearts - of our parent bloggers as they capture the ups and downs - joys and fears - of parenting. Our parent contributors hope that by sharing their stories, they may help others. Feel free to join the conversation.

Jane and Jude’s growing and changing a mixed bag

Jude

It seems like forever since I have taken pen to paper, or fingers to keyboard, as the case may be. It’s not because I didn’t think about blogging, it’s not because I haven’t wanted to blog, it’s not because I haven’t had anything to blog about. Quite on the contrary. It’s because, the 2 main subjects of this blog, Jane and Jude, have been sucking every hour out of every day and every minute of every hour with all things, good, tough, new, old, fun, challenging, happy, frightening and ultimately fulfilling.

Echocardiogram reveals hole in Bekah’s heart smaller while new leak detected

Bekah lounging in a basket.

Bekah had a routine cardiology appointment a little over a month ago. For the last month I’ve been debating what to write about it and how I feel about what we learned there.

Peanut update: Making many more strides toward important milestones

jordan-eating

We’ve had some small steps for our little man over the past few months. During our physical therapy visit on Jan. 26 Jordan took his first steps while using his walker all by his big boy self.

No one patches pants, but hearts are another story

sarah-bekah-and-chris

March 5, 2012, was a long day. We knew that the next morning we’d be taking Bekah to Akron Children’s Hospital for open heart surgery. It seemed like we spent the entire day just watching the clock, calculating how much time we had to spend with our baby girl before we needed to leave for the hospital.

2 years ago, a prenatal ultrasound revealed lil Peanut’s spina bifida

Randy holds Jordan

This month marks our 2-year Spina Bifida birthday. Getting that diagnosis during our 20-week prenatal visit was the most scary, overwhelming, uncertain, difficult moment I’ve faced so far in our lives.

Jordan’s surgery for ear tubes and to remove his adenoids goes off without a hitch

Megs pulls Jordan in a wagon several hours after the surgery.

Last week we were faced with our first surgery for Jordan since his back closure and the insertion of his vp shunt in his little head that leads to his stomach cavity. After our visit with Dr. Anton Milo (Jordan’s ear, nose and throat doctor), he suggested removing Jordan’s adenoid and placing tubes in his sweet little ears.