It all started a few years ago. We decided it would be a good idea to add a baby to our two-person family. We were ecstatic last March when we learned we were finally pregnant. After months of making the hour drive to Akron a few times a week for infertility consults and treatments, we […]
Following Your Heart is a blog by Sarah Plant. She shares her experience as a first-time mom whose daughter was born with a congenital heart defect. Sarah lives in Mineral Ridge, Ohio, in Trumbull County with her husband, Christopher, their daughter, Rebekah, and their rabbit, Gussie. She is a former high school English teacher.
As soon as she was born, Rebekah spent a few hours under an oxygen hood at Trumbull Memorial. Nurses took blood and they reassured us that she’d probably be fine. A few hours later, we met the transport team that took her to St. Elizabeth’s. At St. E’s the nurses became our best friends. They […]
There’s a cliché you sometimes hear in the NICU—“Two steps forward, one step back.” Well, in the past seven and a half weeks Rebekah has been making leaps forward and only taking baby steps back. I guess we were just due for a bad day. In the past weeks, my husband, Christopher, and I have […]
We’ve reached the point where, for us at least, everything revolves around Rebekah’s heart. If she isn’t eating, if she isn’t awake as much, if she isn’t gaining weight, if she’s fussy, if she just doesn’t seem right — is it heart related? Everything relates back to her heart for us, even if it doesn’t […]
Sometimes it’s difficult when I think of all we’re missing out on. Rebekah will be 2 months old Jan. 12 and most of our family members have never seen her. We haven’t passed her around to the visitors we do allow because of the germs they may be carrying.We haven’t tried out all of the […]
Rebekah has a somewhat disgusting trick she does about once a week. She waits until no one expects it, and then wiggles until her ng (the feeding tube that goes from her nose to her tummy) moves. She gags, and before anyone has time to react, her ng comes out of her nose. It is […]