I wrote my own interpretation of the 12 Days of Special Needs. Buckle up and read on.
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Hey, Jude! is a blog by Sarah Sanford. The author shares her experiences as the mother of two adopted children, Jane and Jude. Jude has multiple special needs, including cerebral palsy and sensory processing disorder. She spends a lot of time at Akron Children's Hospital with Jude.
Up until a few months ago, sleep was Jude’s one and only constant. He physically required 14-17 hours of sleep per day. Plus a healthy nap. We fought him and he fought his droopy eyelids to stay awake long enough to eat dinner.
I don’t think any parent is prepared for their kiddos to change the rules of the game. But in our case, when Jude changes rules, he raises the roof! What we need to remind ourselves is that Jude isn’t making the rules – he is merely living by the rules that his body chemistry and brain are dictating. – See more at: http://inside.akronchildrens.org/2013/08/01/alphabet-soup-diagnoses-are-not-the-all-of-jude/#sthash.X4PUdE1i.dpuf
Jane, at the seasoned age of 6, has had her fair share of bad hair days. Infancy brought with it the “half-fro,” a few tufts of curls sprouting about her head. By age 2, she had a fuller head of curly ques. By age 4, her curly ques had become tight, down close to her scalp, course in texture and, to be honest, a real flipping challenge.
It seems like forever since I have taken pen to paper, or fingers to keyboard, as the case may be. It’s not because I didn’t think about blogging, it’s not because I haven’t wanted to blog, it’s not because I haven’t had anything to blog about. Quite on the contrary. It’s because, the 2 main subjects of this blog, Jane and Jude, have been sucking every hour out of every day and every minute of every hour with all things, good, tough, new, old, fun, challenging, happy, frightening and ultimately fulfilling.
As the year comes to a close, I am doing what lots of people do…reflect. So, I’m prepared to grab a glass of wine and some quiet space and jot down a few of the lessons my awesome kiddos have shared with us this year.