Who says miracles and magic aren’t real? Just ask 2-year-old “wizard” Riley Osborn and her parents. From the day she was born – at 23 weeks, 6 days and weighing just a pound and a half – Riley has been proving her doubters wrong at every step – literally. Riley spent the first 130 days […]
Ryan doesn’t take his spina bifida diagnosis sitting down
Those close to 12-year-old Ryan Zolnier credit him for how he’s overcome so many health-related challenges, but to him it’s just been a way of life. He may not run the way most kids do. Or jump the way they do. Or, candidly, go to the bathroom like other kids his age. But what he […]
Prepared to be Inspired: New Mom Does Whatever it Takes for her Newborn Twins with Spina Bifida
On Sunday, mothers will take center stage, showered with flowers and kind words for the important role they play in all of our lives. Take a moment to admire Linna Nieves, who especially embodies the sacrifice, determination and unconditional love which are integral qualities of all great moms. Linna, an account relationship associate at Huntington […]
Adding New Members to Jordan’s Team
As winter greeted us this season we were also introduced to this year’s winter illnesses. What you don’t realize is how much sickness your children will face in the first few years. Both of our munchkins have had their fair share of colds and ear infections. I really don’t know that you can avoid all […]
Here We Go Again and Again
For some reason the ease that we might feel from having Jordan’s shunt replaced was short lived as this was the first he had expressed discomfort after his surgery. The neuro team at Akron Children’s told us there is a high rate of malfunction in the first year. This doesn’t really put your mind at […]
3-2-1 Cast off
We had been counting down and looking forward to Jordan’s big day of having his cast removed. Neither Randy nor I have ever had a cast or experienced seeing one removed so we were interested to see how Jordan’s little body would be set free. Will, an orthopedic tech, came in and explained how the machine would work as it would cut the cast but not his skin.
