akronchildrens.org

Following Your Heart is a blog by Sarah Plant. She shares her experience as a first-time mom whose daughter was born with a congenital heart defect. Sarah lives in Mineral Ridge, Ohio, in Trumbull County with her husband, Christopher, their daughter, Rebekah, and their rabbit, Gussie. She is a former high school English teacher.

Echocardiogram reveals hole in Bekah’s heart smaller while new leak detected

Bekah lounging in a basket.

Bekah had a routine cardiology appointment a little over a month ago. For the last month I’ve been debating what to write about it and how I feel about what we learned there.

No one patches pants, but hearts are another story

sarah-bekah-and-chris

March 5, 2012, was a long day. We knew that the next morning we’d be taking Bekah to Akron Children’s Hospital for open heart surgery. It seemed like we spent the entire day just watching the clock, calculating how much time we had to spend with our baby girl before we needed to leave for the hospital.

A Heart for Champions

The Plant family dresses up for the Heart Ball

Chris and I have reached the point where we don’t often think about Rebekah’s heart. Over the past few weeks, however, we’ve been thinking of her heart all the time.

Linking the critical care tower to a 100-year home

CAP

Chris and I have been working on remodeling our house, well, since we bought it four or five years ago. Built in 1905, the house had some incredible details that we loved, a huge well landscaped yard that connects to a section of woods, and neighbors who are close enough but not too close. There [...]

For Us, 2012 Was Only a Small Slice of History

Sarah, Chris and Rebekah at Polar Bear Plunge on New Year's Day

For us, 2012 was a pretty big (and busy) year. Looking back, we’ve been amazed at all that has happened, and recently we spent some time discussing all that a year can bring.

Gift giving reminds us all what we’ve been given

Christmas-2011-with-Santa

Last Christmas I was overwhelmed by the generosity of a variety of people and organizations who brought gifts to the NICU for both the babies and their parents. Some of Bekah’s favorite things are those that she received last year as she lay in her tiny bed.