The 12 Days of Christmas Special Needs

Jude in water therapy

I wrote my own interpretation of the 12 Days of Special Needs. Buckle up and read on.

Sand Man (+ melatonin), bring me a dream…


Up until a few months ago, sleep was Jude’s one and only constant. He physically required 14-17 hours of sleep per day. Plus a healthy nap. We fought him and he fought his droopy eyelids to stay awake long enough to eat dinner.

Staff races in honor of patient with cerebral palsy

Team NDSC (L-R): Dr. Victorio, Kathy Duritza, Dr. Sahgal and Madelyne

Two teams from Akron Children’s participated in the Cleveland Triathlon to honor a patient with cerebral palsy.

Thanks to the doctors and staff for helping my great niece with cerebral palsy and seizures


I have had my great niece since she was 2 months old. She is 16 now. The doctors and staff at Akron Children’s were great with her and all of us.

Cerebral Palsy Take Me Out To The Ballpark Event (Photo Gallery)


The “Take Me Out to the Ballpark” event, held Aug. 24, is part carnival, part picnic, and, best of all, a place to celebrate just what these special kids with cerebral palsy can do.

Top 12 Life Lessons of 2012, courtesy of Janey Bug and Baby Jude

Baby Jude

As the year comes to a close, I am doing what lots of people do…reflect. So, I’m prepared to grab a glass of wine and some quiet space and jot down a few of the lessons my awesome kiddos have shared with us this year.