The phone call from the adoption agency came in early January 2016. Sara and Ryan Heckert had prepared for this day for 3 years, when they initiated the lengthy home study process to become approved as adoptive parents. The North Canton couple had spent much of their careers working in the disabilities field, and they […]
After her baby, Gabriel, was born with Down syndrome 17 months ago, Hilary Tonni locked in on what she had to do to ensure he will lead a full and successful life. Like most parents who learn their child has Down syndrome, Hilary, a clinical research nurse at Akron Children’s Hospital, and her husband, Bill, […]
Jack Cleavenger was full of surprises when he was born. Not only did he surprise his parents by arriving early at 34 weeks, he was also born with Down syndrome and a heart problem. “Up to that point, there had been no indication that anything was wrong,” says Sandi, his mother. At just 2 […]
One in every 691 babies in the United States is born with Down syndrome, making it the most common genetic condition. Before my children were born, I was a registered pharmacist and working full time in pediatrics. I was all too familiar with the neonatal intensive care unit (NICU) and pediatric medicine. I grew up […]
In the spring of 2013, Sandi and David Cleavenger anxiously awaited the birth of their first child. Jack arrived prematurely, and soon after, his parents learned he had a problem with his heart. He was also born with Down syndrome. The couple was shocked by the news.
A whole year has gone by. When I think back to this day a year ago, I didn’t know anything about Harper’s awesomeness before she was born. I remember so many emotions that day: nervousness, excitedness, sadness. I was all over the place. If there was anything I could change, I would make sure I had seen my baby before they told me she had Down syndrome and a heart defect.