For some reason the ease that we might feel from having Jordan’s shunt replaced was short lived as this was the first he had expressed discomfort after his surgery. The neuro team at Akron Children’s told us there is a high rate of malfunction in the first year. This doesn’t really put your mind at […]
A love of sports, Akron Children’s Hospital and, of course, their 22-month-old son, Miles, led Megan and Mark Postak to organize a 2-day high school girls’ basketball classic at Wadsworth High School that raised $6,430 for Akron Children’s myelo clinic.
Though it’s only January we have already seen a small glimpse of how our world is going to be turned upside down. We had a great December celebrating the Christmas season. Our season was also welcomed with our 6-month visit to the Myelo Clinic at Akron Children’s to meet with his specialists to assess his progress.
As we’ve journeyed through, life, we have come to rely more and more on our faith to carry us through the good and the hard times. We understand only so much of what happens is truly in our control. We feel that God has brought each member of our family together on purpose.
Jordan continues to grow into his own little person, daily. His language is one of our favorite pieces of this puzzle. His words have turned into short sentences and his sentences conversation followed by myriad facial expressions.
I’m not sure if looking forward or anxiously awaiting is the correct phrase to describe how we felt going into our Myelo Clinic appointment in June. Our last was in December so we were ready to see what our doctors had to say about our little man’s progress.