Jordan’s 18 month Myelo Clinic day at Akron Children’s Hospital arrived with what seems like the same anxiety and excitement as we’ve had in the past.
Hearing cheering in Seville? That’s Randy and Megs celebrating
July 17, 2012 by Leave a Comment
If you heard a little “yahhooo” coming from around the Seville area today around noon, it was Randy and I celebrating our little super hero’s good report from Myelo Clinic. I guess it’s one of those things that as a parent, you think your child is doing well but need the affirmation from the professionals that they see the improvements as well.
Two steps forward…
June 28, 2012 by Leave a Comment
Jordan’s Myelo Clinic appointment was scheduled for last Thursday to meet with his specialists and have some testing for information regarding his shunt and renal (kidney) function. He usually has an ultrasound for both of these tests but due to his soft spot closing, he will now have a CT scan for his shunt to [...]
AFOs are AOK
March 13, 2012 by Leave a Comment
Jordan’s appointments went well. We met with his dermatologist to recheck the birthmark on his tummy. He said that it had grown very slightly, but that comes along with the growth of his body. Again, he was not concerned at this point and will recheck it yearly, unless our lil’ Peanut has surgery, at which time [...]
With new physical therapist comes new ideas
March 1, 2012 by Leave a Comment
Jordan has now been assigned to another physical therapist for our biweekly appointments at the Medina County Board of Developmental Disabilities due to some scheduling conflicts. We have seen Ms. Sandy twice and have been grateful for her expertise in the area of body tissue. Our first visit did not last long enough. She educated [...]
Reality hits us at Myelo Clinic visit
February 20, 2012 by Leave a Comment
Our visit with the Myelo Clinic at Akron Children’s Hospital last week felt like we were prescribed a small dose of reality. Our hearts long for the hope that Jordan’s head, bladder, bowels, and legs will do more than the diagnosis tells us. I came prepared to ask the question about where each specialist feels [...]
