Reflecting back on 2012 is exciting. The big events for us include Jordan sitting up by himself, scooting, crawling, getting his first teeth, taking trips together and introducing him to our family and friends.
Jordan’s Myelo Clinic appointment was scheduled for last Thursday to meet with his specialists and have some testing for information regarding his shunt and renal (kidney) function. He usually has an ultrasound for both of these tests but due to his soft spot closing, he will now have a CT scan for his shunt to […]
Our visit with the Myelo Clinic at Akron Children’s Hospital last week felt like we were prescribed a small dose of reality. Our hearts long for the hope that Jordan’s head, bladder, bowels, and legs will do more than the diagnosis tells us. I came prepared to ask the question about where each specialist feels […]
It’s exciting to see how far an idea can go. Yesterday, at a press conference in downtown Akron, an idea was unveiled – an idea that has the potential to help children, advance medical science, and create jobs. The Austen BioInnovation Institute in Akron (ABIA) announced the formation of APTO Orthopaedics, the first medical device […]
Dr. Kerwyn Jones is another doctor who is so calm and gentle with his presentation. He explained the x-rays and ultrasound results we had during our stay in the NICU. Jordan’s hips are strong in the hip socket, which will allow him to move them without coming out of place. I thought they were, but […]