online community that provides inspirational patient and staff stories as well as information about health and parenting, hospital news, fundraising events and more.
Inside Children's
This past weekend, Janey Bug and Baby Jude got to meet some of my oldest and dearest gal pals at a late afternoon get-together. It was fantastic to catch up with ladies who I have known 25 years (EEKS!) or so. Wee ones running amuck, pizza fresh from the oven, chit chat, amazing spread of [...]
It’s been awhile since my last blog post. Reason being, the joyful madness that is raising these two kids has been joyfully, maddeningly BUSY. Baby Jude had a crazy month in June. I am fairly certain we saw almost every department at Akron Children’s Hospital at some point. With July came a new script for a fitting appointment [...]
I’ve said it before and I’ll say it again. My kids humble me daily. They teach me far more than I could ever teach them. Jane is wicked smart. It’s a blessing and a curse. Her wit is quick, and her heart is painfully large and endearing and never lets go. Baby Jude. In the year [...]
Baby Jude, Jane and us parents were lucky enough to be invited to a day out with Thomas the Tank Engine and DreamNight at the Zoo, courtesy of Akron Children’s Hospital. We can’t say thank you enough to the hospital. They were both such great events, with great people putting them on. With Thomas the Tank, I [...]
Lots of baby boys’ dads dream of raising a football star. A strapping young buck who can tear up the turf. I suspect that Vance has that dream for Baby Jude too. The state of the nation is that Vance needs to check that dream at the door, because it’s time to go from dreams of [...]
In the disability world there are tons of phrases, abbreviations and acronyms to learn. Ways to describe what is happening with your kid in understandable terms. I translate them below for my own use. Engineer his environment for Torticollis/Severe Plagiocephaly (flattened head syndrome): Push all toys to the left so he will turn his head off [...]
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