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3-2-1 Cast off

Jordan

We had been counting down and looking forward to Jordan’s big day of having his cast removed. Neither Randy nor I have ever had a cast or experienced seeing one removed so we were interested to see how Jordan’s little body would be set free. Will, an orthopedic tech, came in and explained how the machine would work as it would cut the cast but not his skin.

Building on our dream for an accessible home

Randy and Jordan staking out land for new home

While navigating through Jordan’s major hip and ankle surgery, we’re in the process of trying to sell our current home and searching for grants to assist with building a handicap-accessible home.

Counting down to cast-off day

jordan-in-anywhere-chair2

I’m not sure what I had expected after Jordan’s hip surgery, but it’s been a crazy ride. We tried to prepare the house for Jordan’s homecoming. I researched on different blogs and looked for suggestions on Pinterest. I watched videos about how to care for him to maybe get some insight for what to expect and where our journey would take us next.

Lady Grizzlies rally around Miles, Akron Children’s

Wadsworth High School girls' basketball team

A love of sports, Akron Children’s Hospital and, of course, their 22-month-old son, Miles, led Megan and Mark Postak to organize a 2-day high school girls’ basketball classic at Wadsworth High School that raised $6,430 for Akron Children’s myelo clinic.

Surgery scheduled to help strengthen Jordan’s legs

Jordan

We met with Dr. Jones and Dr. Baird to discuss Jordan’s upcoming surgery. Randy had talked with Dr. Jones about potentially correcting Jordan’s left ankle during his hip surgery. The tendon only works on the outside of his foot and has started to shift over his ankle bone.

Looking ahead to hip surgery to realign Jordan’s right hip

DSCN9359

Though it’s only January we have already seen a small glimpse of how our world is going to be turned upside down. We had a great December celebrating the Christmas season. Our season was also welcomed with our 6-month visit to the Myelo Clinic at Akron Children’s to meet with his specialists to assess his progress.