A little over two weeks ago, Brian, the orthotist from Hanger Clinic, met with us during our physical therapy appointment. We were so excited that he came to fit Jordan for his daytime ankle foot orthosis (AFO).
The AFOs will assist Jordan with standing by putting him in proper alignment. We are praying that the muscles that haven’t been getting strengthened because of weakness will begin to increase to set him up for walking.
The AFOs that are being fabricated are called ground reaction or floor reaction. They are set up with a rear entry with a section that is solid below his knee to assist with stabilization.
Again we assisted Jordan with picking the pattern, which is the same pattern as his “moon boots” or nighttime AFOs, except they’ll have a white background instead of blue.
Currently Jordan is working on pre-crawling activities. Our therapist demonstrated how we can assist his hips to move while he’s reaching to one side then switching to the other side. We were all amazed at how well he took to the initial activity.
Our next appointment to be fit into the new AFOs is scheduled for the end of this week. We are so excited for the next chapter of ambulation.
Another milestone Jordan achieved was receiving his first haircut. If you would have asked me 2 years ago if I thought our child would need a trim before his 1st birthday I’m not sure I would have believed you. It took me a year to get enough hair to cover my head. Randy, however, had a thick head of hair so I guess it could have gone either way.
We were surprised that the hair shaved in the NICU was just as long as the side that wasn’t. The trouble spot was the top.
Jordan’s newborn hair was very dark and has since changed to a reddish blonde. So the tips of his hair were still dark and very long.
So with my feet dragging Jordan received his first official cut from a barber in Seville who has cut his grandpa and daddy’s hair. It was definitely a Kodak moment.
Read more about Megs’ and Randy’s journey of raising a child with spina bifida through her blog, Labor of Love.