We met our inspirational, courageous, heroic, soldier in February through Akron Children’s Hospital. We were so excited to watch and listen to the radiothon this year. Randy and I would leave either the radio or computer on for the duration of the event. We were inspired by each story that came across the airwaves.
Archives for June 2012
Jordan’s Myelo Clinic appointment was scheduled for last Thursday to meet with his specialists and have some testing for information regarding his shunt and renal (kidney) function. He usually has an ultrasound for both of these tests but due to his soft spot closing, he will now have a CT scan for his shunt to […]
Kim Musgrave loves the way the iPad captures the attention of her son, Luke. Luke is 14 but functions at about a 2-year-old level due to his struggle with cerebral palsy. Musgrave recently shared her app recommendations for kids with special needs during a parent support group meeting at Akron Children’s Hospital.
Something happened in my own home recently that made me know, really know, that I was onto something with my 10 commandments for compassionate disability awareness- particularly No. 4 (Teach your children to ask you questions if they have them).
Friends of mine from OhioCycleWorks Charities are cycling their way across the country to raise money for Akron Children’s Hospital. On June 13 – the day the race started – my son, Jake, was scheduled for a spinal fusion at Akron Children’s Hospital. The bike team decided to dedicate their race to Jake and another boy, who was also helped by Akron Children’s a couple of years ago when he had a tumor.
Like many of our “before Bekah” plans, a visit to Morristown, New Jersey, to see Chris’ grandfather was delayed indefinitely when Bekah took a trip to Akron, Ohio, instead. Originally, we planned to make the trip to New Jersey when the baby, whoever he or she was, was about 3 months old.