Eron was delivered by C-section, weighing only 2 lbs., and 5 ozs., and 13 1/2 inches long. Before my son was even delivered the intensive care transportation unit was already there to take him.
It took them almost an hour to get him stabilized. They brought him into the room for us to see him before they took him to Akron Children’s NICU.
Within 24 hours the doctor wanted to take him off the ventilator and put him on vapotherm. He was doing great. One day when he was 2 weeks old he got sick.
Dr. Protain was afraid he had NEC and started doing everything she could with medicine and started blood work. NEC is where the bowels start to die and holes develop in them. The survival rate is low.
We were asked to come in immediately. We stayed in the Reinberger Family Center for the night.
The next morning at 6:30 a.m. we were awakened and told he was starting to take a turn for the worse. They wanted him in surgery ASAP. We rushed down to talk with the doctors and surgeons and sign the release forms for the surgery.
He was rushed up to surgery with Dr. Parry.
I honestly don’t remember how long it was. The radiothon was going on then and we would go watch from the windows. We were finally paged to come to the desk and they took us to a room where the entire family piled in.
Dr. Parry explained that Eron had to have blood transfused through him 2 times through and the outlook was not a good. All they could do was give him pain medications to make him comfortable for us to be able to say good-bye to our son.
It was really hard to hear that at any minute your child can die. Dr. Protain would not give up though. She hit him with so many antibiotics and medicine.
He had 8 IVs at one point in time. We watched our 2lb son go to 5lbs from the water weight.
When it was time for shift change we had to set up a plan on when to stop. Our reply was simply they could stop trying when he stopped fighting.
Every hour there was blood work being done to see where his blood count stood. Each hour I watched Dr. Butler come into the room with more skip in his step each time.
Little by little our little son was giving this infection more of a fight than anyone thought possible.
Two days later Eron was doing well enough for Dr. Pittinger to take him back into surgery, take the packing out of his stomach, and look at his intestines. It was about 3 hours later and I was by the doors when he came out.
He told me it was miraculous. All the intestine that he had seen was pink and healthy. I was so overjoyed I hugged him. I then went and told the family around the corner.
Slowly, he kept getting stronger, healthier and bigger. At about 4 months old he had to have a G-tube put in since he was having issues drinking from a bottle.
While we were waiting in the room for him to go back into surgery, 2 nurses walked passed us, stopped, walked back and looked at the chart name. They didn’t even think it was possible.
We discovered they were from his first surgery. The one told us he had never sweated more in his life and he was a true miracle.
Our son was finally able to come home on June 26, 2012, the day he turned 5 months old.
Eron is now 2 years old. He had to have therapy for awhile and is doing so great he is actually scoring older than he is. He had the G-tube taken out only a few months after he came home.
Our son is alive and happy because of Akron Childrens Hospital. We can never express our gratitude for what they did.