After Jordan’s hip and ankle surgery, he seemed to be doing well and was transported to the 5600 unit. The staff educated Randy and me on his pain pump, which administered medication through his IV.
Jordan was very thirsty afterwards, and as much as he hated to, he threw up in his little blue bag. After that, he would randomly look at me and say, “I don’t need to throw up. I threw up in the bag.”
The first night was difficult. He woke up with pain in his hip and under his upper right arm, which we later contributed to his spica cast pushing on his ribs.
Before surgery I imagined sitting around in the hospital for a couple of days waiting to take Jordan home. But I don’t really remember sitting a lot. Jordan had several low-grade fevers and every time his fever broke, his hair would be drenched in sweat. He ended up with a Mohawk because I rubbed his head so much.
Physical therapy finally came in to show us how to transport Jordan to his wheelchair. The awkwardness of his hip spica cast made our little peanut very uncomfortable. She and another therapist also showed us the special car seat we would be taking him home in.
When Dr. Jones came in, he asked if Jordan’s stuffed monkey, Nick, had been casted as well. So Nick was then casted.
Jordan continued to have pain throughout the day so we requested pain medication as well as something to help with muscle spasms to help him relax enough to sleep because he hadn’t slept all day. Unfortunately, around 11 p.m., Jordan became agitated, pulling off his gown and IV, and becoming delusional.
We attempted to walk the halls with him in his wheelchair to see if he would fall asleep, but every time he would start to dose off, he would startle, yelling out for us. At one point he looked at Randy and asked, “Who dat lady over there?” He was pointing to me, his mommy.
Jordan also asked about the chickens in the room and wanted to go into the barn in the wall. By 3 a.m. we asked if the pain management team would come in and help. The anesthesiologist and nurse came in and told us it was probably a reaction to one of the medications. About an hour later, he finally fell asleep peacefully in his bed.
After he woke up, a volunteer brought in a cart of goodies. Jordan picked out a couple of tattoos, cars and a pair of glasses with a big nose and mustache. The glasses were a great hit. Jordan put on the glasses and greeted the doctors and nurses as he sat in the hall in his wheelchair. He was also able to get a nap in and we found a pain medication his body was able to handle without the side effects.
That evening, Jordan had to move to another patient room, where we were greeted by a nurse who had taken care of Jordan when he had his shunt surgery.
The next morning, we were excited to find out his nurse was going to be Julia, who had been one of his nurses when we were in the NICU.
Throughout day 3, Jordan continued to have pain and fevers but seemed to calm down by late afternoon. We were glad we ran into Dr. Baird in the hall. We also saw Shannon from myelo clinic and Brian from Hanger Orthotics. Each person who visited gladly signed his cast and agreed to wear Jordan’s crazy glasses for a picture.
There is something about being in a hospital where you are greeted with a smile and know there are people who go out of their way to make a difference. From Dr. Jones, who was thoughtful enough to have Nick casted, to Dr. Adamcyzk, who provided a green and blue cast.
It truly makes a scary situation better knowing that these people have dedicated their lives to not only helping children physically but also as being a light in their lives as well.