We officially have a muscle school graduate. What an amazing journey. We could not have asked for a better experience.
We watched Jordan go from externally rotating his right leg out before surgery, to wincing at each crawl, to attempting to stand with his walker, getting new bracing to help with support, walking so tall with his braces and keeping his toes pointed forward, going the distance then walking with canes. God is so good.
The decision to participate in Akron Children’s day rehab program was somewhat of a no brainer. We had been searching for something more than the 2, half-hour sessions he was getting at school. It seemed that we should do more, but what?
This was a chance to somewhat start from scratch then go the full extreme of 8 weeks,5 days a week for 5 hours a day. We were told before surgery it may take 4 to 6 months for Jordan to get back to where he was. By week 6, Jordan was taking a few steps with quad canes. This was something he had done a while ago with a lot of help.
When I was about halfway to Akron Children’s I realized I had Jordan, Gabriella, a bag of bracing and a walker. I was problem solving as I was unloading the vehicle.
OK, so if I carry Jordan, I can balance the bag on the walker, have Gabriella push the walker as I guide with the other hand.
Being a mom has really challenged my multi-tasking skills. When we finally made it to Jordan’s room I put him down with a large sigh and informed his therapist of our new goal – Jordan needs to walk himself to and from the car.
Though it took the extra time, tears, melt downs, motivation, bribery and a whole lot of love, we made the goal possible. I’m still in awe that he was able to endure the journey. At times when he was really tired his hero Gabriella would take hold of his chariot and help push his walker as he walked the halls.
We had fun in between as well. We were able to go see and ride Thomas the train and attend Dream Night at the Akron Zoo. Dream Night is one of our favorite events of the year. We’ve had the privilege of meeting families throughout our journey so most of our time spent is catching up.
Jordan loved seeing Air Bear and the horses as we entered the Akron Zoo. Gabriella was fascinated by Ms. Wheelchair Ohio, Amanda Young’s crown – so much in fact that she came over to ask if she could get her picture with Gabriella.
We also enjoyed riding the carousel and the train. I think the evening may have been trumped at our final stop at the otter slide. Each time took mommy’s breath away as the kiddos rode on my lap to speed through.
Jordan’s birthday fell during Muscle School. He was blessed as the staff threw him a birthday party with his muscle school friends and staff with a special guest appearance from Brittany, his child life specialist he had during his surgery. We’ve come to realize she may officially be his first crush as we watched him gaze at her when she entered.
We were sad to see this chapter of our journey come to a close as we’d established our relationships with his therapists. In fact we decided to continue coming to outpatient therapy once a week in hopes of continuing with the continuity of care he had established with Ms. Sarah.
We had to wait a little while for her schedule to open. But now we’ve started back with Ms. Sarah and she knows how Jordan works and cooperates so it was an easy transition. We are so blessed to have so many special people in our lives and are thankful to continue to see how Jordan continues to grow.
It’s been an adjustment getting into a new routine without Muscle School. It’s hard keeping up with getting him in his equipment to continue walking. We’ve tried to make adjustments.
Saturday mornings our family loads up in daddy’s old truck and heads over to the Lodi Outlets. Shopping…nope we park at the end of the parking lot, unload the walker and head to the food court for Auntie Anne’s pretzel bites. Window shopping is always a treat, too.
God has big plans for this little boy, we are enjoying the ride.