Alex’s Playground, which Bekah has deemed “the BEST playground in the WHOLE WORLD!”
Every year since Bekah was born our September has gotten busier, and this year was no exception.
For the first time we didn’t have a cardiology appointment. We’re spreading them out to a little over a year apart for the next few appointments so they’ll be in the summer and not during the school year in a few years.
Instead, Bekah had an appointment with Dr. Lawhon, eye doctor extraordinaire.
Back in March Bekah had an MRI of her head. It confirmed that she is missing a nerve in her right eye, and that the same nerve in her left eye may be underdeveloped. That was mostly what we had expected to find, and gave us a much better name for what we’ve been referring to as the “crazy eyes.”
Unlike most kids, who can look in towards their noses and cross their eyes, Bekah can splay hers outward. It’s worriesome, to say the least, and it’s also got a real name. It’s called Duane’s syndrome. Bekah’s seems to be a fairly mild case, and so doesn’t require surgery now, and hopefully won’t in the future either.
Her MRI also showed some mysterious white splotches. Unlike the missing nerve, these were something we weren’t expecting.
However, in his typical, incredibly kind way, Dr. Lawhon predicted that we’d read the MyChart report and get a little (ok, more than a little) upset. He didn’t just look at the MRI himself, he also took it to the neurology department and had them check it too. How awesome!
That sort of extra care is something we’ve become used to with all of Bekah’s doctors, but it’s still something that we’re aware doesn’t happen everywhere. That’s why we feel incredibly blessed to have such an amazing team of Akron Children’s doctors who all practice here in the Mahoning Valley, too.
Just to make sure the mystery spots stay the same, Bekah will have a follow-up MRI in March, and we’ll go from there as far as deciding what happens next.
While at Dr. Lawhon’s awesome new office, Bekah made a donation to the Miracles and Promises Radiothon. We’ll have our radios tuned in Wednesday, Thursday and Friday from 6 a.m.-6 p.m. so we can listen to all of the amazing stories…well, except for Friday morning at 8.
We’ll be doing some TALKING instead of just listening that day.
Oh, and in case you haven’t checked out the new eye offices yet, they’re in Building C…the building right beside Alex’s Playground, which Bekah has deemed “the BEST playground in the WHOLE WORLD!”
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