We were grateful to host Monika Němcová, MD, who works for Rare Diseases Czech Republic, a patient organization there. She leads a grant-funded project to integrate palliative care into the complex care of patients with rare diseases. She is currently assessing the situation in the Czech Republic, looking at how patients with rare diseases, families […]
If you know a child who is coping with grief related to the death of a parent, grandparent, sibling or other close family member, we would like to share some of the summer grief camps for children available in our area. At a grief camp, children participate in a variety of activities that can be […]
The Compassionate Friends is a national non-profit organization specifically for parents who have lost children. The Akron chapter has been meeting monthly at Akron Children’s Hospital for 12 years and recently held its 11th Walk to Remember on May 27. Just over 130 families have belonged to the group over the last 12 years, with […]
In 2000, Jeannine and Steve Marks were looking for a way to tie their joy of running with their desire to support charitable organizations. That’s when they came up with the idea of establishing an Akron Marathon. They created a business plan, wrote down best practices from races in other cities they had been to, […]
Each year, the Haslinger Family Pediatric Palliative Care Center at Akron Children’s Hospital sends handmade, signed holiday greeting cards to their patients and families, as well as bereaved families. The number of palliative families keeps growing every year, and this year there were 1,400.
Here at Akron Children’s Haslinger Family Pediatric Palliative Care Center, we are celebrating National Hospice and Palliative Care Month during November. This is a great opportunity to share information about pediatric palliative care and our program here at Akron Children’s Hospital. What is palliative care? Many people are not sure what palliative care is, or may […]