When our son Colton was diagnosed with a rare bleeding disorder at birth in 2002, our family entered a world we were unsure of. No one in either of our families dealt with a chronic illness. Our first year was rough. We had no idea how to protect our son from internal bleeding. We depended […]
After two weeks of unusual bleeding episodes, Colton was sent to Akron Children’s for testing to confirm a bleeding disorder. He was diagnosed with severe hemophilia, a genetic disorder that typically affects boys. Having no prior experience with any chronic illness, Matt and I were both overwhelmed.