Baby Jude’s first Summit DD Calico classroom teacher, Lucy, is great. She made our transition into an integrated classroom an easy one. So when she asked me and another Calico mom to speak at her church as part of a disability awareness initiative, I jumped at the chance to repay her.
I was at Akron Children’s Hospital last Thursday, but not with Baby Jude. Not doing Parent Advisor stuff and not picking up or dropping off paperwork. I was at Akron Children’s Hospital to visit a little baby boy and his Mama.
In the land of IFSP (Individual Family Service Plan) turned IEP (Individual Education Plan), you hear a lot of terms thrown about. Many of which you don’t take to heart or give a second thought.But there are some that stick in your craw.
For me, this week it was the term “typical.”
Work. That is the visual I had in my head when Baby Jude was initially referred to occupational therapy. I mean, it’s occupational, right? It is therapy designed to help injured, older or recovering people get back to work, right? How can a 7 month old baby need that?
1) When a doc performing an exam and ultrasound of your boy’s belly says, “Wow, you weren’t kidding about his constipation issue, were you?” it’s not a good thing. New medication added, follow up with gastroenterologist TBD. See you soon Dr. Fyda and/or Emergency Department. Poop Gate 2012 is clearly underway! 2) Insurance paperwork, appeals procedures […]
At least that has been the question swirling around Baby Jude’s neurological episodes in the past month or so. Baby Jude’s team – therapists, Vance and I, cousins, aunts – have witnessed and/or noted a major increase in body tremors and new seizure like activity. He has had an additional EEG, and an extended EEG is […]