In his first months of life, Caden Jacobson slept a lot more than his mother, Amanda, thought was normal. He mostly ate and slept, and he wasn’t growing much either. A first-grade teacher from Wooster, Amanda knew something was not right. Numerous trips to doctors didn’t point to any medical causes for Caden’s lethargy. But […]
Families and patients share their experiences with the Akron Children's Hospital Heart Center.
More than 2,000 miles separated Amy Tippets from her nearest family members when she and her husband, Trevor, received difficult news 16 weeks into their third pregnancy. Their in-utero daughter was diagnosed not only with Trisomy 21 (Down syndrome), but with a congenital heart defect called AVSD that would require surgery soon after she was […]
Katherine Schroeder was born with a hole in her heart and an abnormal valve, known as congenital heart disease. She then developed other heart defects. She had her first surgery at 1 month old, which repaired the hole in her heart. At 2 months, she had a metal valve put into her chest. And […]
Jack Cleavenger was full of surprises when he was born. Not only did he surprise his parents by arriving early at 34 weeks, he was also born with Down syndrome and a heart problem. “Up to that point, there had been no indication that anything was wrong,” says Sandi, his mother. At just 2 […]
Four and a half years ago our almost 4-month-old baby girl had just had open heart surgery. On the day of surgery I fought back tears, tried to be brave, and smiled and waved at her as she was carried away by two loving nurses into surgery. Without surgery Bekah wouldn’t have lived past toddlerhood. […]
With recent news that Cavs’ latest trade pick, Channing Frye, was finally cleared to play after his physical, it reminds me of the debate that’s been going on for decades: Should all athletes be screened for enlarged heart syndrome? There are 2 types of enlarged hearts. The first, athletic heart syndrome, is caused by normal […]