A whole year has gone by. When I think back to this day a year ago, I didn’t know anything about Harper’s awesomeness before she was born. I remember so many emotions that day: nervousness, excitedness, sadness. I was all over the place. If there was anything I could change, I would make sure I had seen my baby before they told me she had Down syndrome and a heart defect.
I’m going to begin this post by saying that I am going to be honest. Some of what I say might not make sense to you, but if other moms of kids with Down syndrome or any other medical issue are reading this, I want them to know they are not alone when they have […]
One thing we’ve learned is that if doctors say there is a slight chance something might happen, it will happen with Harper. We see more specialists at Akron Children’s Hospital than I ever thought possible.
From sepsis to open heart surgery to getting the breathing tube removed, a lot has happened to Harper Cunningham in the weeks she has been in the PICU.
I never thought the morning I brought my daughter to Akron Children’s ER that I would still be sitting here in the hospital, 31 days later. The first week of May I started to notice some signs that concerned me. Harper was paler than normal, coughing, but not a sick cough, and didn’t seem like herself. I called her cardiologist to get his opinion. He said it sounded like her failure was getting worse, which was expected. He wanted her cough checked out to make sure nothing else was going on.
After the past 2 months, we have our routine of doctor appointments down to a science. Or so I thought. At our first appointment to see Dr. Diane Langkamp at Akron Children’s Hospital’s Down Syndrome Clinic, Harper decided she did not want to play.