After her two children passed away following battles with cystic fibrosis (CF), Rosalie Angel wanted to give back to the hospital and the center that was there for her family when they needed it most. Rosalie made a $10,000 gift to Akron Children’s Hospital’s Lewis H. Walker, MD, Cystic Fibrosis Center through the donation of […]
Editor’s note: Dr. Stone passed away May 7, 2018. Read the obituary. Make a donation in his memory at: giving.akronchildrens.org/stone If you set out to spend more than half a century practicing pediatric medicine, Dr. Robert Stone knows he was fortunate to see his career span the period between 1961 and 2016. It was a time […]
In the last 4 years, Melissa Rich, a 28-year-old new mom with cystic fibrosis, got married, had a healthy baby and is living the life she never dreamed possible. She attributes a big part of it to the new drug Kalydeco, which she has taken since 2012. “Now I don’t worry about a decline in […]
Marcia Miller appreciates the simple things in life: baking lemon blueberry bread, tending to her fairy garden, playing the piano with her daughter, watching her grandsons play soccer, and snuggling up with her beloved toy poodle Mickey. At age 64 and with cystic fibrosis, Marcia knows she has defied the odds and shouldn’t even be […]
A recently approved cystic fibrosis drug has been garnering headlines. The drug, called Orkambi and manufactured by Vertex Pharmaceuticals, treats the underlying cause of CF and could potentially help half of the entire CF population.
My daughter Autumn had been a “sick baby” from birth. We received diagnoses from asthma (which she does still have) to,”She is just a sick baby.” For four long years this is what we heard infection after infection, hospital stay after hospital stay, antibiotic after antibiotic. But I knew something was something more than asthma or that […]