One in every 691 babies in the United States is born with Down syndrome, making it the most common genetic condition. Before my children were born, I was a registered pharmacist and working full time in pediatrics. I was all too familiar with the neonatal intensive care unit (NICU) and pediatric medicine. I grew up […]
In the spring of 2013, Sandi and David Cleavenger anxiously awaited the birth of their first child. Jack arrived prematurely, and soon after, his parents learned he had a problem with his heart. He was also born with Down syndrome. The couple was shocked by the news.
A whole year has gone by. When I think back to this day a year ago, I didn’t know anything about Harper’s awesomeness before she was born. I remember so many emotions that day: nervousness, excitedness, sadness. I was all over the place. If there was anything I could change, I would make sure I had seen my baby before they told me she had Down syndrome and a heart defect.
As we enter the new year, we invite you to look back at our most popular blog posts of 2014. They range from inspiring patient stories – a few submitted by our families themselves – to important health information. We chose these stories based on page views. We hope you enjoy! 20. The big move […]
I’m going to begin this post by saying that I am going to be honest. Some of what I say might not make sense to you, but if other moms of kids with Down syndrome or any other medical issue are reading this, I want them to know they are not alone when they have […]
One thing we’ve learned is that if doctors say there is a slight chance something might happen, it will happen with Harper. We see more specialists at Akron Children’s Hospital than I ever thought possible.