Jack Cleavenger was full of surprises when he was born. Not only did he surprise his parents by arriving early at 34 weeks, he was also born with Down syndrome and a heart problem. “Up to that point, there had been no indication that anything was wrong,” says Sandi, his mother. At just 2 […]
One in every 691 babies in the United States is born with Down syndrome, making it the most common genetic condition. Before my children were born, I was a registered pharmacist and working full time in pediatrics. I was all too familiar with the neonatal intensive care unit (NICU) and pediatric medicine. I grew up […]
In the spring of 2013, Sandi and David Cleavenger anxiously awaited the birth of their first child. Jack arrived prematurely, and soon after, his parents learned he had a problem with his heart. He was also born with Down syndrome. The couple was shocked by the news.
A whole year has gone by. When I think back to this day a year ago, I didn’t know anything about Harper’s awesomeness before she was born. I remember so many emotions that day: nervousness, excitedness, sadness. I was all over the place. If there was anything I could change, I would make sure I had seen my baby before they told me she had Down syndrome and a heart defect.
As we enter the new year, we invite you to look back at our most popular blog posts of 2014. They range from inspiring patient stories – a few submitted by our families themselves – to important health information. We chose these stories based on page views. We hope you enjoy! 20. The big move […]
I’m going to begin this post by saying that I am going to be honest. Some of what I say might not make sense to you, but if other moms of kids with Down syndrome or any other medical issue are reading this, I want them to know they are not alone when they have […]