I’m going to begin this post by saying that I am going to be honest. Some of what I say might not make sense to you, but if other moms of kids with Down syndrome or any other medical issue are reading this, I want them to know they are not alone when they have […]
One thing we’ve learned is that if doctors say there is a slight chance something might happen, it will happen with Harper. We see more specialists at Akron Children’s Hospital than I ever thought possible.
From sepsis to open heart surgery to getting the breathing tube removed, a lot has happened to Harper Cunningham in the weeks she has been in the PICU.
I never thought the morning I brought my daughter to Akron Children’s ER that I would still be sitting here in the hospital, 31 days later. The first week of May I started to notice some signs that concerned me. Harper was paler than normal, coughing, but not a sick cough, and didn’t seem like herself. I called her cardiologist to get his opinion. He said it sounded like her failure was getting worse, which was expected. He wanted her cough checked out to make sure nothing else was going on.
When Harper was a few days old, we began noticing a milky-white quality to her eyes. A trip to the vision center at Akron Children’s Hospital confirmed what I was scared to hear: Harper has cataracts, so big that she can only see light.
One week after my daughter was born with Down syndrome and a heart defect, we began the many trips to doctors. The first appointment was with Harper’s pediatrician. We drove down the street to the Green ACHP office, where we met the new doctor at the practice, Dr. Jennifer Snyder.