Dr. Kathryn Mosher remembers a time when she had to explain to a parent what a diagnosis of spinal muscular atrophy (SMA) meant – and there was no hope to be offered. “In the natural history of that disease, most children die by the age of two. If they do survive past that, they are […]
Living with a brain tumor is a new way forward for Dylan
Nine-year-old Dylan Modelski only knows one speed – fast – and he applies it to all 5 sports he plays. But, this spring, the Poland McKinley third grader was diagnosed with a brain tumor that he couldn’t out run on his own. “The school nurse called to tell me she was concerned about Dylan’s reaction […]