A whole year has gone by. When I think back to this day a year ago, I didn’t know anything about Harper’s awesomeness before she was born. I remember so many emotions that day: nervousness, excitedness, sadness. I was all over the place. If there was anything I could change, I would make sure I had seen my baby before they told me she had Down syndrome and a heart defect.
When my son William was 6 months old he was diagnosed with dysphagia. In August of this year, Dr. Albert put tubes in his ears and removed his adenoids. Dr. Albert was hoping that removing the adenoids would help with the dysphagia.
Our little miracle, Savannah, or as she would come to be known by her nickname, Savvy G, was born last July weighing a mere 1 lb., 2 oz. On Jan. 19, she aspirated fluids into her lungs and we took her to Akron Children’s Hospital.
When Harper was a few days old, we began noticing a milky-white quality to her eyes. A trip to the vision center at Akron Children’s Hospital confirmed what I was scared to hear: Harper has cataracts, so big that she can only see light.
Noah was born at 28 weeks gestation, weighing only 2 pounds, 5 ounces. Noah spent almost 2 months in the NICU at Akron Children’s Hospital.
Something happened in my own home recently that made me know, really know, that I was onto something with my 10 commandments for compassionate disability awareness- particularly No. 4 (Teach your children to ask you questions if they have them).