When 12-year-old Brooklyn was a week old, she fell into a week-long coma. Testing at Akron Children’s showed she had an under-active thyroid and 2 pineal brain cysts. A later check-up by cardiologist Grace Smith also showed she had a hole in her heart and a leaky valve. She’s endured all of her medical trials during her short life with grace and hope.
Bekah had a routine cardiology appointment a little over a month ago. For the last month I’ve been debating what to write about it and how I feel about what we learned there.
Even though Heinz Pak was born with a hole in his heart, it didn’t stop him from being an active kid and adult. When he was 3 weeks old, Heinz was diagnosed with ventricular septal defect (VSD), which can be one or more holes in the wall that separates the right and left ventricles of the heart. VSD is one of the most common congenital (present from birth) heart defects.
As soon as she was born, Rebekah spent a few hours under an oxygen hood at Trumbull Memorial. Nurses took blood and they reassured us that she’d probably be fine. A few hours later, we met the transport team that took her to St. Elizabeth’s. At St. E’s the nurses became our best friends. They […]