January is Birth Defects Prevention Month, and Akron Children’s Hospital is spreading the word about how common birth defects are, the toll they can take on a child’s health and well-being, and how to prevent them. Facts Birth defects are conditions present at birth that may adversely affect an individual’s health by changing the body’s […]
In February, Elizabeth Smith’s 2-year-old nephew Kyle Matthew Smith passed away from myotonic dystrophy, a type of muscular dystrophy. “He spent a large portion of his life at Akron Children’s Hospital,” Elizabeth said. “His death obviously had a big impact on my children, so they decided they wanted to raise money for Akron Children’s.” […]
Seven-year-old Wyatt Hubbard was a bit too focused on his right arm and its brief encounter with a needle to fully grasp the bigger picture. The needle was the first step to begin the infusion of a therapy just approved by the FDA for Duchenne muscular dystrophy (DMD), a rare and devastating disease that affects […]
Makenzie Yovanovich was born with big brown eyes and a sweet disposition, but there was something about her tiny stature that had her parents worried. “She was sort of floppy, even for a newborn,” said Jennifer, Makenzie’s mom. “We could tell something wasn’t right so doctors started testing her right away to figure out […]
I am the music therapist at Akron Children’s Hospital in Akron, Ohio, and I’m writing to see if Justin Bieber would do us a huge favor by dropping by to visit Megan Parker. Megan is a 13 year old girl and patient that I’ve been working with since she has been hospitalized in our pediatric intensive care unit (PICU). Megan has end-stage Ulrich’s progressive muscular dystrophy and was hospitalized over 2 months ago with respiratory failure.