Our connection to Akron Children’s Hospital goes back 12 years. Our first son, Derek, was born 5 weeks early via emergency C-section after a placenta abruption and was brought to Akron Children’s neonatal intensive care unit.
Son’s difficulty in swallowing leads to feeding tube
When my son William was 6 months old he was diagnosed with dysphagia. In August of this year, Dr. Albert put tubes in his ears and removed his adenoids. Dr. Albert was hoping that removing the adenoids would help with the dysphagia.
Pirate’s life for Harper Infant cataracts and feeding tube latest in daughter's medical journey
When Harper was a few days old, we began noticing a milky-white quality to her eyes. A trip to the vision center at Akron Children’s Hospital confirmed what I was scared to hear: Harper has cataracts, so big that she can only see light.
Sometimes A Girl’s Gotta Eat
One of the most surprising things about heart surgery for me was that the surgery itself wasn’t that bad. The hard part for me came during her recovery when I realized that we would once again be fighting an old NICU ghost. After a few days on the ventilator, and a few minor setbacks, the […]
She’s an “A” Forever
People say that babies set their own schedules, but I’m not so sure about that. Bekah came home on a very specific schedule. In the NICU at Akron Children’s Hospital, she was an “A.” That means she ate at 3, 6, 9, and 12. Every three hours she was assessed (temperature taken, heart, lungs, and […]
Learning the NICU dance
There’s a cliché you sometimes hear in the NICU—“Two steps forward, one step back.” Well, in the past seven and a half weeks Rebekah has been making leaps forward and only taking baby steps back. I guess we were just due for a bad day. In the past weeks, my husband, Christopher, and I have […]
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