For Will Brown, running in the Akron Children’s Hospital Akron Marathon Race Series is personal. He’s not necessarily going after personal best times, rather he’s running to support Akron Children’s which has helped his family in the most personal way possible – saving his son’s life. Will’s son, Grayson, was diagnosed with congenital heart defects […]
Four years ago on Jan. 21, 2012, we brought our first child, Bekah, home from a 70-day stay in Akron Children’s NICU. For many it would have been a day for celebrating. For me, it was one of the most terrifying days of my life. Three days earlier, Dr. Feick, a neonatologist, had begun prepping […]
Today Bekah turns 4. I almost can’t believe it. Chris has gone to work, and Bekah and Sam are both still asleep. I have a million different things I should be doing. Instead, I am laying in bed, typing this, thinking of how different my life was just 4 years ago. At this very moment […]
In the spring of 2013, Sandi and David Cleavenger anxiously awaited the birth of their first child. Jack arrived prematurely, and soon after, his parents learned he had a problem with his heart. He was also born with Down syndrome. The couple was shocked by the news.
We think about hearts a lot here at our house. In fact, while everyone else celebrates hearts in February, we reserve most of our excitement for March 6, Happy Heart Day, the day of Bekah’s open heart surgery.
A whole year has gone by. When I think back to this day a year ago, I didn’t know anything about Harper’s awesomeness before she was born. I remember so many emotions that day: nervousness, excitedness, sadness. I was all over the place. If there was anything I could change, I would make sure I had seen my baby before they told me she had Down syndrome and a heart defect.