At Akron Children’s, we believe in the power of personal stories to provide support and inspiration. We encourage you to share how we’ve touched you and your family, and by doing so, allow our online community to learn from your experiences.

Experimental drug for mitochondrial disease gives father more time with his kids

Mike Bole was diagnosed with MELAS (mitochondrial myopathy, encephalopathy, lactic acidosis and stroke) syndrome and Dr. Cohen told him about a clinical trial for a new medication from Edison Pharmaceuticals call EPI743.

Jordan’s first visit to the ER

We are always up for a little adventure, but a lot of adventure is a lot overwhelming. Jordan came home from his first day of school telling us that he hit his head on the concrete floor. This seemed a little odd since his teacher had not said anything about Jordan getting hurt. I was […]

Early diagnosis of bacterial infection helps Hudson teen get back on track

By the time most patients receive the diagnosis of the bacterial infection Lemierre syndrome, they are extremely ill in the intensive care unit. But thanks to Dr. Shankar Upadhyayula, an infectious disease specialist at Akron Children’s Hospital, honor student Amanda Gamble had an early diagnosis and a quick recovery and is now back at Hudson […]

Bekah’s 4th birthday brings a wiser mommy

Today Bekah turns 4. I almost can’t believe it. Chris has gone to work, and Bekah and Sam are both still asleep. I have a million different things I should be doing. Instead, I am laying in bed, typing this, thinking of how different my life was just 4 years ago. At this very moment […]

Busy teen refuses to let Crohn’s disease run his life

When Johnnie Murphy was 9 years old, his mom, Natalie, started to notice he didn’t seem to feel well whenever it came time to eat. “He’d push his food around on his plate or even try to hide it,” she said. “I always chalked it up to the fact that he probably ate too much […]

I’ll forever sing Akron Children’s praises

Akron Children’s was beyond amazing from the moment we walked through the ER doors until now. My 10-year-old son Connor has had a concerning amount of bruising the last couple months while playing tackle football. Last week he had a dental cleaning and they said there was an abnormal amount of bleeding. I called our […]