Vibrant and active Elle Ciavarelli, of Kirtland, Ohio, is a perfect example of how skull abnormalities don’t slow down a child or define one. When Elle was 2 months old her pediatrician and parents noticed her head wasn’t growing at the recommended pace. “Our pediatrician sent us to a geneticist, who then recommended we see […]
At Akron Children’s, we believe in the power of personal stories to provide support and inspiration. We encourage you to share how we’ve touched you and your family, and by doing so, allow our online community to learn from your experiences.
In the last 4 years, Melissa Rich, a 28-year-old new mom with cystic fibrosis, got married, had a healthy baby and is living the life she never dreamed possible. She attributes a big part of it to the new drug Kalydeco, which she has taken since 2012. “Now I don’t worry about a decline in […]
Faith was born 7/9/08 at 27 weeks. She spent 63 days in the NICU. The doctors told me she would be there at least 3 months. She has PVL (a type of brain injury that affects infants), asthma, severe learning disabilities, and a few years ago, she got bit by a tick and got […]
Marcia Miller appreciates the simple things in life: baking lemon blueberry bread, tending to her fairy garden, playing the piano with her daughter, watching her grandsons play soccer, and snuggling up with her beloved toy poodle Mickey. At age 64 and with cystic fibrosis, Marcia knows she has defied the odds and shouldn’t even be […]
Childhood cancer can change a lot of things, but for Jackie Custer of Canton, the changes she speaks of aren’t about hair loss or rashes, they’re about family and strength. “I remember that (being diagnosed) day like it was yesterday,” said Jackie. “My parents were pulled out of the room … when they returned my […]
Tyler Jordan’s family first came to Akron Children’s when he was 8 years old to be treated for cerebral palsy, because its Boardman location was close to their home in Niles. His mom, Glenna, remembers being told when Tyler was born that he would never walk, talk, etc. We are happy to say Tyler, now […]