It’s difficult to tell who enjoys their therapy sessions more – speech and language pathologist Emily Waler or 11-year-old Katylynn. Emily has been helping Katylynn expand her language using a communication device known as the Accent 1000. Instead of pressing keys on the device’s screen, Katylynn activates a switch with her hand to select the […]
At Akron Children’s, we believe in the power of personal stories to provide support and inspiration. We encourage you to share how we’ve touched you and your family, and by doing so, allow our online community to learn from your experiences.
One in every 691 babies in the United States is born with Down syndrome, making it the most common genetic condition. Before my children were born, I was a registered pharmacist and working full time in pediatrics. I was all too familiar with the neonatal intensive care unit (NICU) and pediatric medicine. I grew up […]
As we approach the 1 year anniversary of our 2 year-old daughter surgery, my wife and I have been reflecting on the journey we’ve been on since Evelyn’s diagnosis of sagittal craniosynostosis back in March of 2015. We want to share with the doctors, nurses and leaders at Akron Children’s Hospital just how profoundly thankful we […]
Vibrant and active Elle Ciavarelli, of Kirtland, Ohio, is a perfect example of how skull abnormalities don’t slow down a child or define one. When Elle was 2 months old her pediatrician and parents noticed her head wasn’t growing at the recommended pace. “Our pediatrician sent us to a geneticist, who then recommended we see […]
In the last 4 years, Melissa Rich, a 28-year-old new mom with cystic fibrosis, got married, had a healthy baby and is living the life she never dreamed possible. She attributes a big part of it to the new drug Kalydeco, which she has taken since 2012. “Now I don’t worry about a decline in […]
Faith was born 7/9/08 at 27 weeks. She spent 63 days in the NICU. The doctors told me she would be there at least 3 months. She has PVL (a type of brain injury that affects infants), asthma, severe learning disabilities, and a few years ago, she got bit by a tick and got […]