In February, Elizabeth Smith’s 2-year-old nephew Kyle Matthew Smith passed away from myotonic dystrophy, a type of muscular dystrophy. “He spent a large portion of his life at Akron Children’s Hospital,” Elizabeth said. “His death obviously had a big impact on my children, so they decided they wanted to raise money for Akron Children’s.” […]
Seven-year-old Wyatt Hubbard was a bit too focused on his right arm and its brief encounter with a needle to fully grasp the bigger picture. The needle was the first step to begin the infusion of a therapy just approved by the FDA for Duchenne muscular dystrophy (DMD), a rare and devastating disease that affects […]
Makenzie Yovanovich was born with big brown eyes and a sweet disposition, but there was something about her tiny stature that had her parents worried. “She was sort of floppy, even for a newborn,” said Jennifer, Makenzie’s mom. “We could tell something wasn’t right so doctors started testing her right away to figure out […]
Expectant parents know all about preparing their home for a new baby, but the most important steps they can take to safeguard their child’s health start well before pregnancy begins. January is Birth Defects Prevention Month, and Akron Children’s Hospital is spreading the word about how common birth defects are, the toll they can take […]
I am the music therapist at Akron Children’s Hospital in Akron, Ohio, and I’m writing to see if Justin Bieber would do us a huge favor by dropping by to visit Megan Parker. Megan is a 13 year old girl and patient that I’ve been working with since she has been hospitalized in our pediatric intensive care unit (PICU). Megan has end-stage Ulrich’s progressive muscular dystrophy and was hospitalized over 2 months ago with respiratory failure.