I wrote my own interpretation of the 12 Days of Special Needs. Buckle up and read on.
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Here’s a snapshot of leaving the house with a toddler with Sensory Processing Disorder (SPD) and Autism Spectrum Disorder (ASD) – a snapshot of leaving the house with Baby Jude.
For Akron Children’s Hospital’s mommy bloggers, blogging has provided a way to chronicle the ups and downs of parenting a child with a serious medical condition.
Work. That is the visual I had in my head when Baby Jude was initially referred to occupational therapy. I mean, it’s occupational, right? It is therapy designed to help injured, older or recovering people get back to work, right? How can a 7 month old baby need that?
At least that has been the question swirling around Baby Jude’s neurological episodes in the past month or so. Baby Jude’s team – therapists, Vance and I, cousins, aunts – have witnessed and/or noted a major increase in body tremors and new seizure like activity. He has had an additional EEG, and an extended EEG is […]
I was asked to submit a piece for committee consideration – a talk, a nugget of “my story” for an upcoming event. I wanted to – really wanted to, but I could not fathom speaking, intelligibly, about the little man and his big sister. I could barely write the following without crumbling into tears. Long story, […]