akronchildrens.org

The 12 Days of Christmas Special Needs

Jude in water therapy

I wrote my own interpretation of the 12 Days of Special Needs. Buckle up and read on.

These Are a Few Of My Favorite Things, Baby Jude style

Jude getting a haircut

Here’s a snapshot of leaving the house with a toddler with Sensory Processing Disorder (SPD) and Autism Spectrum Disorder (ASD) – a snapshot of leaving the house with Baby Jude.

#TechTuesday: Moms find therapeutic benefits of blogging

For Akron Children’s Hospital’s mommy bloggers, blogging has provided a way to chronicle the ups and downs of parenting a child with a serious medical condition.

Hi Ho, Hi Ho, it’s off to “work” Baby Jude goes. . .

Jude Sanford

Work. That is the visual I had in my head when Baby Jude was initially referred to occupational therapy. I mean, it’s occupational, right? It is therapy designed to help injured, older or recovering people get back to work, right? How can a 7 month old baby need that?

To seize or not to seize, that is the question

Sarah holds Baby Jude

At least that has been the question swirling around Baby Jude’s neurological episodes in the past month or so.  Baby Jude’s team – therapists, Vance and I, cousins, aunts – have witnessed and/or noted a major increase in body tremors and new seizure like activity. He has had an additional EEG, and an extended EEG is […]

Grateful, Prayerful & Hopeful – a lesson learned

Sarah with Jane and Jude

I was asked to submit a piece for committee consideration – a talk, a nugget of “my story” for an upcoming event. I wanted to – really wanted to, but I could not fathom speaking, intelligibly, about the little man and his big sister. I could barely write the following without crumbling into tears. Long story, […]